I am pleased to introduce a guest blogger for my Child Safety Blog:
Meet Ashley Taylor. She is a freelance writer, photographer, and
advocate for people with disabilities. She created DisabledParents.org to
provide information and resources to other parents with disabilities. When she
isn’t working, she enjoys spending time with her husband and two children. Her guest post is below.
Parenting with
a Disability - How to Prepare Your Heart and Home for Little One
Adjusting to parenthood is a challenge for
everyone. You prepare the best you can, but a good part of parenthood is
learning as you go. If you’re living with a disability, you may face some extra
challenges taking care of a new baby, but just like any other new parent, the
key is to being willing to learn and grow. Here are a few tips to prepare your
home and your heart for these challenges, so you’ll be ready to face them
head-on.
Preparing your home and gear
No matter what your limitations may be, baby
gear will take over your home. As you start thinking about everything baby
needs, you will find that some baby gear works for you, and other things may
need to be adapted. Every disabled parent will have different limitations of
course, but a great place to start is with the babycare equipment guide from Through the
Looking Glass. In many cases, simple adaptations to equipment and to your home
will allow you to care for your child independently.
Connecting with parents who are in a similar
situation can go a long way towards helping you figure out how to adapt so you
can parent the way you really want to. For example, many parents choose
babywearing these days to keep babies close, while at the same time keeping
your hands free to do other things. The Disabled Parenting Project has how-to videos for everything from babywearing
in a wheelchair to making a crib and changing table accessible.
For some of your child’s needs, you may find
that an alternative activity works just as well to accomplish the same goal. As
one disabled mother on The Mighty explains, she found that while she couldn’t
play on the floor with her daughter, they would have “highchair” time instead. They got the same
quality time together that other parents may find from “floor time,” and because
they would spend that time doing flashcards, their daughter learned things like
shapes and colors early. Based on your situation, start thinking about the ways
you want to interact with baby and how you can set up your home to make these
interactions work.
Preparing mentally and emotionally
Becoming a parent is unlike anything else, and
the full emotional weight of that role is hard to understand before the time
comes. But you can start preparing now for how you will handle the emotional
rollercoaster of parenthood, and especially for the specific needs you might
have parenting with a disability. In the past, parents with disabilities often
had a hard time finding support and connections. Now with social media, it’s
easier than ever to find other parents with disabilities who have been in your
situation. Start seeking out these communities now because they will help you
feel connected and can also help you find practical advice based on your shared
experiences.
Even with the best support and adaptations for
care, the early days of parenting can be overwhelming and stressful. You’re running on
very little sleep, and you’re on-call 24/7 for your precious little one’s
needs. This is enough for any new parent to feel run down, so go ahead and give
yourself permission to take the time for self-care that you absolutely need to
be a good parent. As a new parent, even your basic needs can slide, so start
there, with sleep, good nutrition, and exercise. Beyond the basics, plan on taking a day just for yourself at least once a
month. This time should be away from the house (or home alone) where you do
something nourishing just for you.
New parenthood is a time that is both amazing
and amazingly stressful. This is true for any new parent, but as a parent with
a disability, you may need to prepare for it a little differently. As you
prepare, try to find a balance between accepting your limitations, and at the
same time celebrating what you can do to care for your little one.